By Valerie Anne Pascual
“Writerly nook,” a Facebook fan page, created a fundraising event for a 4-year old child suffering from Chordoma, a rare tumor that develops in the bones of the skulls and spine. The event would be held at Chinese garden (Rizal park) on August 29, 2016 from 9am-3pm.
The administrators of Writerly nook Facebook fan page came up with the idea of compiling writings pieces of different volunteer writers to publish a book named “Pages of Life,” with a tagline, “saving life thru pen,” a collection of 48 short stories and poems.
“The earned funds from that event will all be given to Aedan Pio Pascual Malvar. We created this event to inform the public about our project’s goals: to help, share, inspire, and teach,” Maryann Campo, one of the event organizers, said.
Writerly nook invited different speakers to discuss some topics about writing. Aside from the writing workshops, the book launch of Pages of Life will be in the same event. Each book costs Php 260.00, and some netizens pre-ordered for their book copy and the payment was sent through Palawan pera padala. Games and some other activities will be expected in the event as well.
Aedan Pio is a painter who dreams to be an astronaut one day and he loves drawing planets. His rare art was recognized at Capitol Hill in Washington D.C., however, he wasn’t able to go to the United States to personally receive his award, supposedly given last March 3, 2016.
Chordoma is a rare tumor that develops in the bones of the skulls and spine and can occur in any age group, and most commonly on people over age 40. The said disease may cause headaches, neck pain, blurred or double vision. It is a slow-growing tumor that are often large when diagnosed. The favored treatment for chordoma is surgery to remove the tumor, and an advanced radiation therapy that uses protons rather than traditional X-rays. The treatment targets tumors and cancer cells more precisely than the common X-rays used. This treatment is used to reduce the risk of reoccurrence.
However, the recurrence of chordoma is very common, and in the last stage of the disease, there are chances that the tumor may spread to other parts of the body. Unfortunately, the treatment for this disease is not yet available in the Philippines, and in the United States, it costs around $250,000 (11 million pesos).